ExpLOriNg caNcEr idENtitiEs: dOEs thE LabEL “patiENt” Or “surViVOr” mattEr?
نویسنده
چکیده
s138. This study empirically evaluated whether there is an important distinction between the labels “cancer survivor” and “cancer patient.” Conducted at the Princess Margaret Cancer Centre in Toronto, this study examined whether these labels were associated with distinct correlates, including an individual’s identity, sense of self, stressor experiences, subjective wellbeing and health-related quality of life. The authors found that identifying as a “cancer patient” and “cancer survivor” correlated moderately with each other. Although both identities correlated significantly with stressor experiences, subjective wellbeing and health-related quality of life, the associations were small in magnitude. Overall, identifying with the label of “cancer survivor” consistently correlated with a number of more positive outcomes than identifying with the “cancer patient” label. The authors concluded that despite subtle psychosocial differences that favour the “survivor” label, the difference in whether individuals identify as a cancer “survivor” or “patient” is less distinct and meaningful than previously believed. The authors stressed that emphasis in psychosocial oncology should be on facilitating effective adaptation to the coping demands and challenges associated with cancer and its treatment. CoMMenTAry: Due to improvements in cancer diagnosis and treatment, individuals who have been diagnosed with cancer are living longer. Almost 33 million individuals worldwide have lived 5 or more years after a diagnosis of cancer (2012 statistics). Over 810 000 Canadians were diagnosed with cancer in the past 10 years (2.4% of the population; 2009 statistics). These individuals are often called “cancer survivors” and this terminology has been embraced by the American Cancer Society, the National Coalition for Cancer Survivorship, the National Cancer Institute’s Office of Cancer Survivorship, and the Canadian Cancer Survivor Network among others. However, as outlined in Devins et al.’s presentation, the label “cancer survivor” has a short history and has become the source of contentious debate. The term was introduced by physician Fitzhugh Mullan in his 1985 publication in the New England Medical Journal as a replacement for existing labels such as “cured.” Mullan’s intention was to recognize that cancer patients not only need support after diagnosis and treatment (what he coined the “acute survival” phase), but during remission and recovery from treatment (i.e. the “extended survival” phase) as well as during a later stage when the likelihood of cancer’s return is sufficiently small that cancer is no longer considered a risk (i.e. the “permanent survival” phase). Mullan’s publication advocated using the terminology of “cancer survivor” along with attending to the biomedical and psychosocial aspects of survivorship. Subsequently, the label has been widely adopted, however, while some definitions refer to individuals who live even one day after diagnosis, others definitions have been more restrictive and refer to individuals who are cancer-free for a number of years. It has diverse significance for patients, is more frequently used by some (i.e. breast cancer) groups than others, may alienate some individuals, and downplays the possibility of recurrence. Recently, researchers have begun reporting that the adoption of the label “cancer survivor” (rather than ‘cancer patient’ and other identities) has positive consequences for individuals’ physical and mental wellbeing. A recent literature review of 23 studies on cancer identity concluded that “[s]elf-identifying as a cancer survivor was related to
منابع مشابه
Narratives and healing: exploring one family's stories of cancer survivorship.
This study investigates the narratives of one couple who lived through life-changing events following a cancer diagnosis. The narratives of the cancer survivor and her husband are explored as they struggle to cope with their situation, provide support for one another, and consider their changing personal identities. This research addresses the communication dilemmas that often occur when family...
متن کاملWhat's in a name: who is a cancer survivor?
To a layman, the term " cancer survivor " might suggest a person who has beaten their cancer. But to those in the cancer field, it means any number of things, from " patient " to someone who is " post treatment, " to a person who is cancer free but cares for a loved one with the disease. In fact, the definition of the word has become so muddy that the organization that pushed for its use severa...
متن کاملConsumers or Citizens? Whose Voice Will Healthwatch Represent and Will It Matter?; Comment on “Challenges Facing Healthwatch, a New Consumer Champion in England”
Efforts to achieve effective and meaningful patient and public involvement (PPI) in healthcare have existed for nearly a century, albeit with limited success. This brief commentary discusses a recent paper by Carter and Martin exploring the “Challenges Facing Healthwatch, a New Consumer Champion in England,” and places these challenges in the context of the broader struggle to give a voice to h...
متن کاملPatient-centered communication during oncology follow-up visits for breast cancer survivors: content and temporal structure.
PURPOSE/OBJECTIVES To understand the content and temporal structure of survivor-provider communication during breast cancer survivor follow-up visits. DESIGN Descriptive correlational. SETTING Private outpatient oncology practice. SAMPLE 55 breast cancer survivors; 6 oncology providers. METHODS A secondary analysis of audio recordings of survivor follow-up visits. MAIN RESEARCH VARIAB...
متن کاملWhat Is Quality Health Care for Cancer Survivors?
The term “cancer survivor” has been used to identify different populations affected by cancer [1, 2]. The National Coalition for Cancer Survivorship (NCCS) suggests “an individual is considered a cancer survivor from the time of diagnosis, through the balance of his or her life [3].” This definition, which has been adopted by the National Cancer Institute Office of Cancer Survivorship, covers f...
متن کامل